Respecting autonomy in the end‐of‐life care of people with intellectual disabilities: A qualitative multiple‐case study

N Bekkema, AJE De Veer, C Hertogh… - Journal of Intellectual …, 2014 - Wiley Online Library
Background The aim of this article was to describe how caregivers and relatives shape
respect for autonomy in the end‐of‐life care for people with intellectual disabilities (ID) and
to discuss to what extent this corresponds with a relational concept of autonomy, such as
described in care ethics. Method This study consisted of a qualitative design in which the
cases of 12 recently deceased people with ID were reconstructed by interviewing the
caregivers and relatives who were closest to the person at the end of their life. A cyclic …

[PDF][PDF] Respecting autonomy in the end-of-life care of people with intellectual disabilities: a qualitative multiple-case study

I MENCAP, J Wiley - www. nivel. nl nivel@ nivel. nl Telephone+ 31 30 2 729 …, 2016 - nivel.nl
Background The aim of this article was to describe how caregivers and relatives shape
respect for autonomy in the end-of-life care for people with intellectual disabilities (ID) and to
discuss to what extent this corresponds with a relational concept of autonomy, such as
described in care ethics. Method This study consisted of a qualitative design in which the
cases of 12 recently deceased people with ID were reconstructed by interviewing the
caregivers and relatives who were closest to the person at the end of their life. A cyclic …
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